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viz3920 karma

Thanks for doing this. There have been a few people who've done AMA's with this surgery but none who had it so young. My interest is this: My son is 6 and he had the surgery 2 years ago to correct slight scoliosis but some heavier kyphosis (although nowhere near what your picture indicates you have). He's already gone through 3 lengthenings and so far so good, except the kyphosis above the rods is still ongoing so they may need to raise them up. My questions are:

  • Where are you having the surgeries done/who is your doc?

  • How has all of this affected you socially? My son's is not as visible other than 2 bumps at the top of his back which kids are just now starting to notice. We're trying to prepare him for how to explain this to people, not be ashamed of it, have a sense of humor, etc. Any tips on that front?