veloralie

Will you ever be able to have the rods removed? Are they physically acting as your ribs, our are they there to keep them from collapsing (our something along those lines)? Do you have "baby sized" ribs in your chest, since they would never grow, or have they just grown really slowly?

Congratulations! My brother went through something very similar and it was heart breaking. I just have two questions: 1) has your life expectancy changed at all? 2) what was the most uplifting/supportive thing that someone did for you?