useful_idiot118

Hey, OP! I'm 19 with a rare blood disorder that caused my kidney failure. First, check out the subreddit for kidney disease. We can help try to cheer you up on bad days and there's tons of us taking prednisone and dealing with the extra weight.

Secondly, it will get better. You need to apply for Medicare and Medicaid. You should be able to get both because of the kidney disease and they'll pay for just about everything. I'm not sure about your back bills, but they'll really help with prescription coverage. Also, apply for disability and SSI. I know there's a huge stigma to that but seriously, we're sick people.

As for the extra weight, there's really nothing you can do until you get on dialysis. Have you decided which method of dialysis you're doing? PD or HD? Have you been to get a port consultation done? I believe if you can get on dialysis you'll feel loads happier and healthier.

Despite feeling disgusted with your body, things really will get better. I would suggest doing HD for at least a little while because that you can start doing immediately whereas PD you need to wait a couple months after surgery to begin. I know there's lots of creams and things to help with stretch marks.

Open a gofundme page and share the link everywhere. People will want to help you. This could be a way to save up for dialysis surgery or pay back bills. Once you're on dialysis, you'll be eligible for Medicare and Medicaid. Don't let it wait. You'll just get sicker and sicker. You don't want to get to where I was before dialysis. It's absolutely miserable.

I hope this helps some. You just gotta stay positive despite everything. Maybe start seeing a therapist. I take Zoloft now as well. It helps with my depression and anxiety. I'm sorry you've got this disease and I emphasize with you greatly.

Thank you! I appreciate it. It sucks and it's hard but don't feel like you can't complain. Message me if you're ever feeling low and need to talk to someone who understands!

Remind her that swans can be gay.

What's the most crass or insane name you've ever gotten approved? Also, is your favorite color?

Is the persistent scratching due to phosphorous build up? I'm not sure how that works with liver transplants but I've had kidney transplant and could never stop scratching!!