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turquiosekitten3 karma

My fiance is on peritoneal dialysis right now. It's his second time on it and hes also been on hemo dialysis. No transplant as of yet, not that we're not trying. He has a genetic form of kidney failure known as Alport Syndrome (I'd link to it but on phone) and there's too likely a chance that a sibling or relative might have it as well and just continue the cycle. I know what it's like and hes on reddit as well if you ever want to pm sometime or anything. Thank you for the AMA and spreading the word on this, not many people understand what it means when we tell them. :)

Now do you hate phosphorus binders as much as my fiance or is that just exclusive to him? Do you still need to take binders now that you're on hemo? For my fiance it pulled off phosphorus much easier than PD does. And did you have any tricks to remembering to take your binders if you did take them?

turquiosekitten3 karma

Thanks for the reply! Yeah, he's terrible at remembering them also. Oh well, back to the drawing board :).