trappedinthetardis

Hi, speech pathologist here. I'm curious what kind of Assistive Technology you use to express yourself since you said you were "nonverbal." Do you feel like you can easily express yourself? How has being non-speaking affected your life?

Edit: Since people are commenting that the OP uses ASL, I should add that I was wondering how she communicates with people who don't know ASL. The OP has a mastery of English, which would indicate that she is a candidate for alternative or augmentative communication (such as a speech output device). Thanks!

Speech pathologist here. What kind of assistive technology device do you have now? Did your daughter have a role in selecting the device? What doesn't she like about her device? How has the hospital team supported your family in selecting a device and learning to use it?

I would recommend looking into an AAC evaluation by a team who can help your daughter find a device that is right for her. I don't know where you live, but many children's hospitals have departments dedicated to augmentative and alternative communication. These teams look at the specific needs and abilities of your daughter, which devices will be covered by insurance, and even give trial periods. Putting some of the decision-making into your daughter's hands can help her "own" the device and take ownership of working on her communication. Feel free to PM me if you have any questions I can help with!

Speech and language pathologist here. Actually, people getting quieter with Parkinson's is very common! It's one of the main features of the disease for us. Look into finding a speech pathologist who is certified in LSVT here.

Glad to hear LSVT was helpful for you. Wishing you all the best with your treatments and hope to be updated on your results and progress!