tigersharkdude

Not really. At one point, yes, but as of now I have come to terms with it.

I live by, "Never say that it can't get any worse". I know that there are countless people that have it much worse than I do, so I know that it can indeed "get worse".

"Were you always blind in one eye?" - No, complications from the brain surgeries I had in 2012 affected the nerve that controls my left eye and it is unable to focus :( my vision is 20/200 (I think thats right) in my left eye

"Were you always deaf?" - No. I lost hearing on the right side due to a surgery I had in 1999. The left slowly deteriorated from then up until about 2010-2011, it was around then that I noticed I had 0 hearing .. and that leads to your next question.

"did you learn to read lips?" - Yes, I can read lips quite well. I realized that I was completely deaf because people could be looking at me talking and I would respond as normal, but if they are behind me they got the cold shoulder .. LOL

I'll answer this in steps.

"Is there a chance that more tumors might grow" - Definitely. Tumors are always growing, I have MRIs every 6 months or so to make sure that nothing is growing too quickly.

"Is there a chance you'd need to have more surgeries" - As much as it pains me to say, I can almost guarantee that I will have to have more surgeries down the road.

"I read about the drug Avastin helping to shrink tumors" - I have never heard of Avastin until I read your post, so I had to Google it. Avastin seems to be for Cancerous(sp?) tumors, I read that it has shown to help some people with NF2 but not everyone. I will not be taking any experimental drugs or procedures, I have had no luck with "It might work" up to this point.

"What bothers me the most?" - Probably the deafness. I am quite the car junky and love going to races and such.

I miss being able to hear things like THIS and THIS

As for super powers, I have an absolutely amazing sense of smell and touch. Back to the cars thing, I can literally feel cylinder combustion through a gas pedal, this is quite irritating sometimes though because I'll think something is wrong with my car.

I take it you have NF2 ...