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thomascius1 karma

First of all thank you for this AMA. :) I realise this is probably not the place to ask this kind of question as there are MUCH more interesting things people want to see answered... But I'm SO desperate.

Right, essay time. I suffer with severe migranes of which no doctor or neurologist has found the cause and/or triggers. I get what is known as Visual Migrane Aura/Aurora; I ALWAYS (and I mean ALWAYS) have a small blur in the right side of my vision, I'm about 1ft & a half feet away from my computer screen and it's about three cm to the right and is a tiny bit bigger than a centimetre in diameter. It is SO annoying and I see it even with my eyes closed.

When I have an attack, it cripples me to the point where I can't see a thing but a blurry mess on the right side of my vision. It grows from that spot to an arch-like shape and grows outwards Light is super-sensitive all the time, even on a cloudy day when I have no trace of an attack. When it passes I get an extreme headache/migrane on the left side of my head which puts me in bed for at least the rest of the day.

I've had numerous eye tests, checkups and tests/scans at hospitals. My old GP didn't even BELIEVE ME and thought I was lying to get attention.. hence why she is my old GP (I went private in the ende, waste of money), but I can see why some people would think that way, I've scoured the internet and never heard of any case similar to mine.

I've had to ditch plans, miss important family events and it made me lose a job a few years back as the attacks lasted 9 days straight, over and over. My dad suffers from severe epilepsy and my mum has migrane attacks but nowhere near as sever as mine, I always assume it's a mix of both of these and amplified, but I can't be sure. I work in Quality Control in a warehouse office so I'm infront of a computer screen 8 hours every weekday, I'm also a video game nut so that's more time infront of a screen and I'm part time studying video games creation; my point is it's not staring at screens which is what my parents are adamant of. The attacks are seemingly random and can range from a couple of days apart to 9-10 months, that's the longest it's ever been, since I can remember. Any help or advice would be tremendously appreciated.

Sorry for the essay, lol.