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terrasee0 karma
Fellow zebra myself with hEDS as well. Curious about the other issues that accompany this disease. Do you experience issues with POTS (heart condition) and MCAS (mast cell activation syndrome)?
terrasee0 karma
Fellow zebra myself with hEDS as well. Curious about the other issues that accompany this disease. Do you experience issues with POTS (heart condition) and MCAS (mast cell activation syndrome)?
terrasee2 karma
Yes unfortunately the pots seems to be the real issue for my family. My 3 daughters also have it (genetic) and this is what to watch out for. Those who think they have hEDS should get the ultrasound on the heart valves to make sure
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