snaps03

1. I'm pretty sure my insurance hates me. I have to call all the time to get them to bill everything correctly. I already met the deductible for the year but, until that happens the bills are pretty ridiculous.
2. It took around six month for me to stop getting people that were just guessing or pretending that they knew what was going on. Now my doctor calls all the time to see how I am doing and to tell me what she is thinking.
3. I have my normal doctor who coordinates everyone else,several neurologists, epileptologist, rheumatologist, cardiologist, chiropractor, and a hematologist.
4. My most helpful medication at the moment is Depakote ER.

I currently have the most supportive and caring boyfriend ever. We have been dating for almost a year and he just spent three nights on a hospital couch. I would love to get married someday but for right now I'm just thankful for everyday I get. I don't want to have children but, I would love to adopt some day!

I do ask him for help but, I think it is more of a thankful relationship. I am very thankful for everyday I get to be alive and spend with my family and friends. I am thankful for all the support I have whether it comes from my medical team, my befriend, family, or friends.

Right now my doctors are looking into genetic issues being the root of the problem, especially mitochondrial disorders. I had swine flu and whooping cough a few months before everything started so that could have had an impact. Most people with autoimmune disorders have more than one so, I have met many people who have several issues.

I think that there is a very high possibility that I may have a hidden super power that causes my diseases!