simplystanloona

I had the sarcoma for about a year before it was removed. I thought it was just a funny pimple, but nope, and I was misdiagnosed a bunch of times.

First, when I had surgery to remove it they said it was a pyogenic granuloma (I think that's what it's called in English, it isn't my first language), then they said it was a melanoma, and finally in February I was diagnosed with cutaneous Ewing's sarcoma. The sarcoma went through half the cities in my country and it ended up in France, where they found what it was.

I basically had online school, they sent me the homework, projects, etc I had to do with classroom. The teachers did a wonderful job, ones more so than others but overall they gave me all I needed. I didn't have exams because I couldn't go to school, so they just sent me work to do.

From 2nd treatment onwards, I was just more hungry than usual because of the corticosteroids, and my sleep schedule is as usual, you have to mess me up really bad to make me not sleep. First treatment tho, I wasn't hungry and slept a bit less for the days I stayed, but since I'm doing fine.

Thanks!

I was stage 1-2 when it was removed. I asked my oncologist if it would be possible to not do chemo, but they said the chance of relapse is unknown, probably low, but since they don't know they just gave me chemo.

I usually talk with the older kids, and we talked about our interests, played some board games, even do exercise. I actually have made a few friends in here, but most have finished their treatment already.

With the younger ones, i maybe bring them a board game or a book for their age, or talk about the things they like.

Death isnt usually the conversation I have with the other kids, I have brought it sometimes and yeah, we talk about fear and cancer recurrence mostly.

I've also have hospital roommates I talked to pass away, and seen oncologist announce that a disease is terminal, that's the worst feeling I felt in a looong while, even if it wasn't about me.

Yes, they'll use me as a case study, even the chemo they are using is just a test, they are giving me the normal Ewing sarcoma chemo, which is kinda rough but it is what it is, since its so unknown no one knows another alternative.

Thanks!