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sha2056127 karma

my 4 year old son has chd and is waiting for a heart. He went into cardiac arrest a week ago and just got his Berlin heart until a real organ donor comes along. Unfortunately he had a severe edema after the arrest and the procedure and we won't know if we will have our little boy back.

He's currently defied the neurologists by holding our hands, moving around, and trying to look for us. He's not exactly where he should be but it's positive. We on the other hand as parents are emotional wrecks.

Your story gives me hope and I wish you nothing but the best. Give your parents a hug for me. Can you share your wild transplant story? I would like to see if there are any parallels with our journey.

sha20568 karma

Thank you so much. Your story gives me hope.

They are going to close his chest today and next week we will see where he is when he wakes up. Doctors say his edema is still subsiding so with what they have seen so far he should get better. It's just hard news to reconcile with what doctors initially said that he would not wake up or if he did there is too much damage.