sbarto

Absolutely. Complications of hydrocephalus vary greatly. My son has SB and hydrocephalus. And like you he does very well in school. We've had him tested by a neuropsychologist and while he has a slight impairment in reading comprehension at higher levels (when meaning is hinted at but not explicitly stated) he is normal. He also has binocular vision on occasion (comes and goes as he has strabismus when he's tired.)

He never has headaches, tiredness, or any other symptoms OP described.

Everyone is different. And you're right, getting tested can reveal things that aren't immediately noticeable and enable you to get intervention before it becomes a problem.

I would respectfully disagree. If you get even $1 of ssi you automatically qualify for medicaid. You're right about the income. But there is a sort-of work around. It's called medicaid buy-in. Limits vary from state to state and not all states offer it (although most do.) As for assets limits, check out an able account and/or a special needs trust. No monies in either of those counts toward asset limits for ssi or medicaid. Of course there are strict guidelines that mist be followed but it's really not too onerous. Medicaid has a bad reputation but it really is a great program for the disabled.

Kind of a weird question I suppose, but do ever get any strange body odor? I ask because my son has previously gone through periods of intense strange odor for which doctors could find no cause. Mitochondrial damage was thrown out as a possibility. Even the suggestion of supplementing with CoQ10. It hasn't reared it's ugly head since he's gotten older, thankfully. But we never did find out what it was, and don't know if it will come back.

To be clear, I'm not talking about normal body odor. Or unwashed stink. This was a strange, pungent, intense odor that emanated from his skin, sweat, urine, even ear wax. Even straight out of the bath it was there. It would permeate any fabric it touched. Even lingered in rooms for over an hour after he left.

Check into ssi and medicaid. You may qualify. Medicaid will pay almost all of your medical expenses. It has its limits of course. And there is some red tape. But it covers a lot and there is little to no copay. Source: my son is disabled and gets ssi and medicaid.

On your visit to Antarctica, did you ever leave the ship?