i believe that my wife may have sent you an image of my son...he has left main-stem bronchomalacia, and she sent you a pic of him in the hospital, with a vest and IPPV being used during his RT. if anyone else reads this, it means that the main left stem of his bronchial tube is floppy - especially on normal exhale, including coughing, this section will close off briefly. the result of this is that, even though he's 5, he's had pneumonia upwards of 20 times, and has been hospitalized about 18 times (he's only 5).
due to the number of times that he's been hospitalized, we have of course asked about options. in the past, surgery has always been out because the risks have far outweighed the possible benefits. however, do you think that this changes that balance at all, or do you feel like this is really a target for more extreme cases than ours?
thank you again, from a very personal place - your work directly impacts families like ours, and it really gives us hope!
sarastic_fool3 karma
hi doctors!
i believe that my wife may have sent you an image of my son...he has left main-stem bronchomalacia, and she sent you a pic of him in the hospital, with a vest and IPPV being used during his RT. if anyone else reads this, it means that the main left stem of his bronchial tube is floppy - especially on normal exhale, including coughing, this section will close off briefly. the result of this is that, even though he's 5, he's had pneumonia upwards of 20 times, and has been hospitalized about 18 times (he's only 5).
due to the number of times that he's been hospitalized, we have of course asked about options. in the past, surgery has always been out because the risks have far outweighed the possible benefits. however, do you think that this changes that balance at all, or do you feel like this is really a target for more extreme cases than ours?
thank you again, from a very personal place - your work directly impacts families like ours, and it really gives us hope!
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