Thanks for doing the AMA! I read that you may be nearing a transplant... How "sick" do you have to be before getting a lung transplant as a person with CF? In my limited experience as an ICU nurse I've only come across one patient who went on to have a lung transplant (at a different hospital because mine doesn't do them, hence the lack of exposure to them!) This patient had severe pneumonia (not CF), was on an ECMO machine (basically a bypass machine for when the lungs aren't working), and could only manage to breathe in about 10ml of air per breath (as opposed to the normal 500ml or so). Will you have to be that sick to get a transplant? I sure hope not!!!
Also, is there a chance you may need another transplant once the CF takes a hold of your new lungs?
rn-charli2 karma
Thanks for doing the AMA! I read that you may be nearing a transplant... How "sick" do you have to be before getting a lung transplant as a person with CF? In my limited experience as an ICU nurse I've only come across one patient who went on to have a lung transplant (at a different hospital because mine doesn't do them, hence the lack of exposure to them!) This patient had severe pneumonia (not CF), was on an ECMO machine (basically a bypass machine for when the lungs aren't working), and could only manage to breathe in about 10ml of air per breath (as opposed to the normal 500ml or so). Will you have to be that sick to get a transplant? I sure hope not!!!
Also, is there a chance you may need another transplant once the CF takes a hold of your new lungs?
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