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rhythmkiller10 karma

I've received a strong kick to the head 7 years ago which gave me my 3rd concussion. I still have daily migraines, as well as other daily symptoms (nausea, dizziness).

I've seen 5 neurologists who specialize in the treatment of concussions, as well as 2 other neuros. I've had every test under the sun (MRIs, CAT scans, EEGs, x-rays, neruo-psychological testing...). Hemorrhaging is something that can be present, in my case it was, but it's usually found rather quickly. Basically what I'm saying is that if it's possible to have been diagnosed with something else, I would have been.

The thing about concussions is that they play dirty. Some people are better after a week, some people are like me and don't know when. Some medication works for a couple people, some only help one. It's a frustrating experience of trial and error.

PCS is very broad and doesn't just mean you have a migraine and feel dizzy. It's definition changes depending who you ask and on what day.

I've gotten used to people offering treatment advice, but that is something incredibly frustrating. I appreciate people who want to help but it's something that feels almost insulting when it's someone who isn't a neruo or has suffered a TBI. We dedicate so much of our time just trying to get any amount of relief.

I know you were just trying to help, but arm chair diagnosis generally aren't appreciated.