redbluegreen4066

great question! people with my illness suffer from a very severe form of fatigue that leaves us unable to carry out activities of daily living. it's not technically paralysis, although for the very severely ill, it can certainly feel that way.

i've heard anecdotes of very sick patients being unable to so much as lift a spoon and getting their nutrients thru a feeding tube. there's a young man named whitney dafoe who is very ill and has been living this way for years now.

a picture of whitney, https://scontent-lga3-1.xx.fbcdn.net/hphotos-xpt1/v/t1.0-9/12963940_860120144117059_4055772743451737093_n.jpg?oh=956293e36700212e13496ff84fb16cba&oe=57B47800 bearing a startling ressemblance to an AIDS skeleton.

i've also heard anecdotes of people having uncomfortable "crawling" sensations on their skin but my experience was of this awful, dull, insidious wholebody pain that never quite left me. people live this way for years and years and somehow manage not to commit suicide.

hope for a cure

i feel like my problem is endemic to the medical system as a whole; finding someone who is willing to take your concerns seriously rather than constantly questioning you is the exception rather than the rule. i fire people left and right; why not.

there's a pressure point test which is somewhat subjective but still considered valid. if you're female defos consult with a lady doctor.