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rainbowbrite0718 karma

Of course it's Tom Hanks. Of course.

rainbowbrite0715 karma

Also the ice cream flavored Pop Tarts

rainbowbrite079 karma

Hey my mom had tracheal cancer. We got a prescription from her doctor for a 2nd nebulizer that ran off battery power. (I think the place we bought from required the Rx but we paid for it ourselves - I want to say around $60.) Anyways, even if you don't go out, it would be useful to have around if the power goes out. Just wanted you to know there's such a thing as a battery powered nebulizer. :)

We never really had to deal with taking her out on suction as 5 days after she got that machine at home she passed away. Probably would have needed a transport ambulance.

rainbowbrite076 karma

Oh man, that sucks. I'm glad you found the app for your phone. At first they gave my mom a dry erase board that was pre-printed with a ton of phrases, an image of the body (so she could point to where she had pain, or itched) and an alphabet. About two weeks later it dawned on me to buy her an iPad! I didn't find an app to speak what she said but she could write it and let whoever read it. :) It helped a lot!

Good luck to you, I hope everything goes well!

rainbowbrite076 karma

Yes, it comforts me that I was right there with her when it happened and it was very quick. Doing CPR on someone for real sucked though. In a couple weeks, it will be 3 years.

I don't remember what brand hers was but it came with the adapter to plug into your car's power port. In case the battery ran out of charge!

Have they tried a Passy-Muir valve on your trach to allow you to speak? She had one.