quantum_neurosis

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quantum_neurosis17 karma2021-04-17 21:01:55 UTC

My sister has a condition called ichthyosis that also prevents eyes from closing fully. You might look up FIRST, the Foundation for Ichthyosis and Related Skin Types, to see if they have any recommendations. Good luck!

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quantum_neurosis3 karma2013-04-15 13:12:21 UTC

Girls - my sister has lamellar! (Though from the pictures it seems hers is more severe than yours.) Thanks for bringing some positive attention to our community.

Edit: Ladies* sorry, didn't realize your ages at first.

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