purplefreak71294

I currently have recurrent rhabdomyolysis, which is the same as exercise induced rhabdomyolysis but it occurs much more frequently and from a wide variety of causes(exercise, illness, etc). My diagnosis was pretty similar to yours. When I was in the 8th grade, I had strep throat, I didn't realize this for at least a week. By the time I had realized it, the damage had already been done. My muscles were in excruciating pain and i could hardly lift my arms above my head. I then went straight to the ER where they told me that I had strep and that they didn't know the cause of my extreme muscle pain, I was sent home. By the next day, my condition had worsened, I could hardly walk, so I obviously could not go to school, after numerous trips to many different doctors over the course of two and a half weeks, I finally started to get better and I could finally start walking on my own. Over the course of 4 years, I continued to have more episodes of rhabdomyolysis, sometimes it was when I was sick and sometimes it was when I exercised. I continued to go to doctors so i could hopefully find out what was wrong with me, I even had a muscle biopsy done later in my 8th grade year where they removed a square inch of my thigh muscle. I didn't receive a diagnosis of rhabdomyolysis until my senior year of high school, that means that I spent over 4 years of my life not knowing what was going on with my body. I just wanted to let you know that I know what you are going through with the pain and frustration with medical professionals.

Not really, I just can't run marathons (which I never did before) and I have to limit the amount of extreme exercise I do. I also have to monitor the amount of caffeine I have because I've been having some heart issues because of my rhabdomyolysis, and I have to get an EKG done every year to make sure my heart is healthy. Basically, I am able to live life just the same as before, but now I just have to be more conscious about my body.