Thanks for doing this AMA! Over at Seattle Children's Research Institute we're also trying to raise awareness of mitochondrial disease and the need for more research - we hosted a pediatric mitochondrial conference in Seattle last week and several families attended to hear the latest in patient care and research. Lots of optimism...but still a ways to go.
So my question...for any families who may have just received word that their child has mitochondrial disease, what advice would you give them?
poradaka22 karma
Thanks for doing this AMA! Over at Seattle Children's Research Institute we're also trying to raise awareness of mitochondrial disease and the need for more research - we hosted a pediatric mitochondrial conference in Seattle last week and several families attended to hear the latest in patient care and research. Lots of optimism...but still a ways to go.
So my question...for any families who may have just received word that their child has mitochondrial disease, what advice would you give them?
For anyone interested...here's a clip from one of our mitochondrial researchers re: hope for what research could do: http://www.youtube.com/watch?v=x77EMtGYI4w
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