I am 20. I have SMA Type II. My writing and attitude is very similar to yours. That being said, reading your answers made me feel like I was cloned and decided to write an AMA. It's both shocking, strange, and slightly comforting knowing there's a second "me" out there.
To the reddit community, I just wanted to say that SMA is a VERY spectrum-like disease. Even Type II, I've known people who have not been able to eat solid foods (more severe end of spectrum) to people who are mostly independent but need help with certain physical things (this is where I am on the spectrum).
Shane, it's refreshing to meet someone with the same condition as me. I've always felt like my life struggle was unique in that I am not paralyzed but require help in a lot of things. My question: how severe is your SMA? Can you use your fingers well? Can you eat solid foods?
Answer as many questions as you can, reading about someone else with my condition is really eye-opening for me.
pastasauce701495 karma
I am 20. I have SMA Type II. My writing and attitude is very similar to yours. That being said, reading your answers made me feel like I was cloned and decided to write an AMA. It's both shocking, strange, and slightly comforting knowing there's a second "me" out there.
To the reddit community, I just wanted to say that SMA is a VERY spectrum-like disease. Even Type II, I've known people who have not been able to eat solid foods (more severe end of spectrum) to people who are mostly independent but need help with certain physical things (this is where I am on the spectrum).
Shane, it's refreshing to meet someone with the same condition as me. I've always felt like my life struggle was unique in that I am not paralyzed but require help in a lot of things. My question: how severe is your SMA? Can you use your fingers well? Can you eat solid foods?
Answer as many questions as you can, reading about someone else with my condition is really eye-opening for me.
View HistoryShare Link