owenhollands

How did your parents cope with managing your condition when you were a child, and how has that impact your relationship with them now?

My daughter spent some time in hospital shortly after she was born, part of that was next to a baby who had PKU. We spent some time talking with the parents - there isn't much to do in hospital when the baby is asleep. I've wondered about how they got on.

From personal knowledge babies require special formula. In Australia it is/was considered a medicine rather then a food.

My daughter spent some time in hospital shortly after she was born, part of that was next to a baby who had PKU. We spent some time talking with the parents - there isn't much to do in hospital when the baby is asleep.