oddmachine

Thank you for your response! I do see a specialist (the one trying to get me surgery), however they're not often available. I guess we don't have that many specialists in the area where I live, though.

Hi, first off thank you so much for this thread. I found out when I was 17 that I had xxgd (though it's still under investigation so to speak). I've never really read about anyone else having this before apart from in very stiff medical journals, so it's sort of comforting to read about someone going through so similar things, even if it's not entirely the same. I'm 23, have been on hormones since I was diagnosed, and have been signed up for a keyhole surgery to "have a look at things". My question is how you experienced that doctors and such explained the diagnosis to you, and also how long it took for you to come in contact with a specialist? Do you go on any check-ups or anything like so?