mynamesyow19
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mynamesyow1985 karma
Hi, Im in pediatric cancer research and coordinate with different trials. After hearing that temodar didnt do much for you guys Im wondering if you've had any genetic testing done, or have heard of/looked into the Pediatric MATCH Program. It might be up your alley, and at the very least any info gleaned will help lots of other kids with similar tumors.
It will basically test a tumor for a specific genetic signature and then see if it matches with any currently developed chemo drug that targets ONLY that genetic signature and leaves the rest of the healthy cells alone. And even if there is not a drug currently ready, as new ones are developed they'll have your signature banked and if they find a matching one (or close to it) they can contact you and see if you'd like to participate in the trials.
All of the drugs must be FDA approved first and will only target a specific mutation tumor cell type.
The trial covers the cost of biopsy and molecular tests, and patients will receive the drugs without charge if they are eligible to enroll for an NCI-MATCH treatment. Neither the patients nor a health plan/insurance company will have to pay for any study-related biopsies or the assigned study drug(s) that were matched to a patient’s cancer.
This program is brand new and is actively looking for trial participants to enroll to begin the full program in 2017. If you think you would be interested talk to your doctor or you can contact here: https://www.cancer.gov/contact
heres some basic info on the MATCH program from the National Cancer Institute: https://www.cancer.gov/about-cancer/treatment/clinical-trials/nci-supported/pediatric-match
and after reading a bit more on the type of tumor I see it is a rare tumor, which this program is especially interested in, bc it usually has a very strong genetic component, especially in childhood, so is a good candidate.
There is also an adult version for anyone else reading it that are interested: https://www.cancer.gov/about-cancer/treatment/clinical-trials/nci-supported/nci-match
mynamesyow1969 karma
Hey Titans fan here since the Eddie George/MacNair days, never thought Id see a titan do a AMA. thank you!
Two questions:
How does the new coaching philosophy of Whisenhunt compare to ex-coach Munchak's?
And how does the running game feel now that CJ is gone?
btw, Great Win over KC this weekend!
mynamesyow195 karma
No question here but thanks for the AMA Alot of us informed folk back in the states keep hearing snippets about how important Turkey could be in this Russia/Crimea/Ukraine stand-off and I'm glad to hear some of the "Straight Truth" thanks!
mynamesyow19176 karma
I mean I told my gf 93% of the things I did in Vegas, just not telling her the other 7% for "reasons"...
same thing here.
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