Thank you for doing this AMA! I to suffer from this condition but albeit in a more mild form. Mine was also late onset (mid teens, now early 30s). It is always a constant struggle to be careful and to try my best to not let it affect my life. It is hard though when basic tasks if done clumsily could result in knocking off a huge layer of skin.
If you ever need anyone to chat with who can relate somewhat let me know.
With regards to the blisters, how do you handle them? Mine seem to be watery blisters that do not go away if left alone so I end up just breaking them and then following basic first aid. I figure there has got to be a better way. Any tips for an EB bro?
mooplee167 karma
Thank you for doing this AMA! I to suffer from this condition but albeit in a more mild form. Mine was also late onset (mid teens, now early 30s). It is always a constant struggle to be careful and to try my best to not let it affect my life. It is hard though when basic tasks if done clumsily could result in knocking off a huge layer of skin.
If you ever need anyone to chat with who can relate somewhat let me know.
With regards to the blisters, how do you handle them? Mine seem to be watery blisters that do not go away if left alone so I end up just breaking them and then following basic first aid. I figure there has got to be a better way. Any tips for an EB bro?
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