Highest Rated Comments

mimacat133 karma

I'm in Belfast and I've noticed a lot of my lupus friends here are having a panic about what it means for us. We've already noticed that there are certain brands of hydroxy chloroquine we can't get and I know that there's fears over particular prednisone and nifedipine as well.

Have you heard any advice for over here specifically? Or is it time to have a proper discussion with my absolute legend of a wonderful pharmacist who has saved my ass many times?

And seriously, you guys are unsung heroes. Thank you.

mimacat8 karma

Have you found anything that supports the link between chronic emotional or work stress with inflammation and autoimmunity? I can tell you there's a link anacedotially and I see it come up over and over again in patient info leaflets, but I haven't seen anything showing the link.

mimacat7 karma

Wonderful! I'm back on plaquenil in a few weeks and that's great news. I'm also incredibly lucky to be one of the few who seem to be able to tolerate any of plaquenil, HCQ, or qunine, but I know there's a lot of lupus people who can't. I also don't think Lupus UK giving out the list of 'at risk' meds has helped their panic

mimacat6 karma

Hopefully you guys are getting some great research ideas from this! Seriously, your work is appreciated and you're helping people like me have as normal a life as possible. Thank you

mimacat3 karma


We're a bit of an oddity over here with this.

Another question: do you think patient advocacy groups publishing the list of 'at risk meds' has helped the panic? I think a lot of the common rheumatology ones had been included on the one Lupus UK put out