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meowkatiekatmeow8 karma

So cool seeing an epileptic pal on the front page!

Something that made me laugh just by scrolling down is how many people have asked you if you smoke weed. I've had to wear 2 ambulatory EEGs and one time I ordered pizza and the first thing the delivery woman said was "oh my god... Are you suffering?... Oh it's seizure monitoring? Weed cures epilepsy."

It just makes me laugh when people watch those Facebook videos about someone putting cannabis oil on a seizing child's foot and suddenly they're the expert over my epileptologist. It's all presumably from a good place, but I'm sure you tire of unsolicited medical advice from friends, family, and strangers too.

If you're plugged in for such a long time, do they ever take the leeds off? Let you breathe for an hour or two? That's such a long time!!!

Edit: I should add that I'm 21 and in college so a lot of people assume I smoke weed to regulate my seizures but I don't. I'm not saying cannabis oil doesn't work, but holy balls let people take their medication in peace

meowkatiekatmeow4 karma

I'm not photosensitive and I felt the same way!!! I'm recently diagnosed (within the past year) and with all the flashing lights I was like "c'mon guys, this is a huge trigger for epileptics!!!" 😡

meowkatiekatmeow2 karma

Ah, Colorado University...