Have you decided yet if you'd have children? Godfather of my daughter's wife has NF2, wife of one of my closest friends of 20 years+. They made the decision to not pass along the gene and not have children. Breaks my heart since I know my buddy and her would have been great parents. She's also done a bit online to help others with it, these are her websites http://www.nf2nycsupport.org and http://www.nf2is.org
My wife and I also made an effort to at least master finger spelling in ASL, as she is pretty good lip reader and in ASL and sometimes just needs a little bit to understand what we're saying.
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Have you decided yet if you'd have children? Godfather of my daughter's wife has NF2, wife of one of my closest friends of 20 years+. They made the decision to not pass along the gene and not have children. Breaks my heart since I know my buddy and her would have been great parents. She's also done a bit online to help others with it, these are her websites http://www.nf2nycsupport.org and http://www.nf2is.org
My wife and I also made an effort to at least master finger spelling in ASL, as she is pretty good lip reader and in ASL and sometimes just needs a little bit to understand what we're saying.
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