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mannatee962 karma

Thank you for sharing your story. What advice would you give to the family of someone who has a child with a lethal genetic condition? How can family members best support the parents of the child?

Sorry if someone’s already asked this but I didn’t see a similar question. My SIL’s baby has a rare genetic condition and the baby has only a small chance to live after birth. It’s very difficult to know when it’s “okay” to talk about it and when she just wants to talk about anything but. I don’t want to upset her by talking about sad things, but I also don’t want to ignore the existence of my nephew who is already so loved by our family. Thank you!