mad_scientist42

I need a research team and that would be my next agenda after getting mobile.

That aside, have you done some research yourself on it? Do you look at this just as a problem waiting to be solved (engineer's perspective) or you have accepted it as it?

Also, if you have done some research, which could be just reading simple biology to understand what is actually happening, in order to understand/find how, could you share some medical details about the disorder?

And what do doctors tell you when you ask them about it? The answer can't be just "we don't know", they must have some sort of hypothesis and maybe a plausible solution to give you hope, right?

Has this genetic disorder been classified? Do you not get curious enough to actually research this yourself (with hope of finding a cure) or the pain has killed the curiosity?

Please do.