looneylovegoood

Hello and thanks for doing this ama! My husband was diagnosed with Arnold Chiari Malformation type 1 a year ago and had decompression surgery toward the end of last year.

My question is how did you know something was wrong after surgery and that you needed further testing? What sort of symptoms did you have? I ask because my husband has had kidney issues and random rapid arrhythmia. It's frustrating when the doctors run ekgs and ultrasounds and say everything is fine but you know it isn't.

I'm glad to hear they know what's going on with you and that you can take the necessary steps to move forward with treatment. Thanks for your input and time!

Edit: clarification

That's really interesting! It's wonderful that your doctor agreed with you and ordered more tests. I think we may end up switching doctors bc his current one doesn't seem to have much interest and keeps saying everything is normal. Thanks for your response and I wish you all best along your journey and recovery :)