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litfan1385 karma

Wow. Thank you so much for doing this. I am beside myself right now.

I have PKU and don't know much about it. I'm learning a lot from you. I have an incredibly mild form (so does my brother) and we were born to parents who didn't know a thing about it other than "Get them on the formula now!" As I was growing up, doctors told my parents that they would need to monitor our levels until our brains were more developed, so we got the finger stick every month until our mid- to late-teens. We've eaten what we've wanted ever since (I'm 30; my brother is 27).

We both have behavioral/emotional problems emcompassed by extreme anxiety and depression. This is something that runs in our family so I didn't think much of it until my psychologist encouraged me to look into PKU for any potential connections, since that's a solid foundation to start with, i.e. we KNOW I have that. I literally found information explaining that it was ONCE believed that a mild form of PKU could go untreated after a certain age (until a woman is trying to have children, of course), but now abandoning the diet has been linked with mental disorders, including anxiety and depression.

Meanwhile, my poor parents who wanted to do what was best for us raised us to focus on the amount of protein in a food. The phrase we always used was "Is that good for us?" "Good" for us were french fries, potato chips, non-milk-based candy, for example, in addition to actual healthy foods. So we were also fucked in terms of our grounding in good, healthy dietary habits.

So again.... I have a disorder I know almost nothing about, and you're teaching me so much. THANK YOU.

TL;DR: I have a mild form of PKU and OP is my hero.

litfan133 karma

If he's going through some stuff, it's definitely worth checking out. I have trouble with this stuff, but it was just so empowering to be able to point to a contributing factor to the problems I was having/have.

I could just cry hearing there is another person out there with "mild" PKU. What few groups I've seen for people with PKU always talk about people with severe PKU, and while I count my lucky stars mine is mild, it's embarrassing and frustrating to be affected by something so mysterious to me in such a mysterious way. My love to your husband!

litfan131 karma

A couple of questions:

  1. Which fan game was the most fun to make, and which fan game are you most proud of?

  2. What is the most helpful/beneficial thing you've learned from your work with other game companies?

  3. What is the most difficult thing about being a "one-man-show"?

Thanks for doing the AMA!!!