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linderpreet128 karma

32 year old anesthesiology resident checking in. Not nearly the same in terms of acuity, but I've had (fucking severe) Crohn's for 17 years, and doing this job while being sick sucks donkey balls. Especially the last couple of months (my soon-to-be-ex-husband, a surgery resident, announced our divorce because I am "too sick to be a good wife". Which blows, because I clearly would much rather not have an H&H of 8/23, but fuck me, right?)

Anyway, just wanted to say, I feel you (kind of), you're tough as shit, and I hope you keep your chin up and whip cancer's ass. :hug:

linderpreet29 karma

ROFL. Tell me about it. When this first happened, I sort of sobbed in disbelief "but what about all the things you said on our wedding day?!" and he rolls his eyes: "Yeah, well, I changed my mind".

Sigh.

linderpreet12 karma

You can never not think about what's going on. You can't take a break from being sick.

I think this is the overarching bitch of the situation, for me. I've managed to stay out of the hospital for five years, but that's largely thanks to our background and the fact that we had gear (IV fluids, angiocaths) so that I could ride out some of the lesser storms at home. But you never leave your illness behind. Even when I'm well, I still have to take pills four times a day (clocking in at 40 tabs/day), plus my q2wk home injections, plus my iron infusions (q1wk x5; month break; recheck). I still have to eat my teeny little snacks spread out pretty much dawn to dusk (which is basically impossible when you work in an OR) and I still have to bitch at my insurance company at least twice a month over SOME missed payment, rejected claim, whatever. I'm not always in an ACTIVE HOLY FUCK FLARE but I never can be without this monkey on my back.

And holy christ, I would give pretty much ANYTHING to be free of this. And to be a normal woman. So I could be a doting wife.

I hope you and your wife cherish each other for your whole lives. It truly warms my heart that there are people out there who can find happiness in spite of such a crapass situation.

linderpreet2 karma

This thread has me in tears. I have had Crohn's for 13 years and am currently battling my insurance company to pay for off-label Stelara so I can finally eat. They rejected my claim today so its off to the appeals process. I've just been a basketcase all day.

I have been flaring for 15 months and thanks to prednisone and methotrexate, my BMI is 16.5, i have osteoporosis and am going bald. I haven't eaten a vegetable since I can't-remember-when. Popsicles have become a food group.

I am a 28 year old med student trying to finish my last year of school and trust me, Crohn's is a nightmare. I am so happy to read that someone has found relief. I wish I lived in a place that allowed me to use this amazing product and feel better. I seriously dream of a day when I'm not a burden to my wonderful boyfriend and friends. Thank you for raising awareness of this horrible disease.