lil-dodo

Its an auto immune illness thats usually post-viral in nature or can be precipitated by a flu vaccine according to the consulting neurologists. Basically, a bug overworks the immune system which then turns against the body and attacks until it's forced to calm down - this is where her antibody treatment comes in to halt progression.

Mary wanted to mention that it's one of the leading causes of temporary fullbody 'locked in ' paralysis due to the inflammation of the peripheral nervous system. Approx 30% of suffers will recover with some level of disability whether it's motor, sensory, fatigue or visual. 95% of patients survive, even those who are mechanically ventilated in ICU for weeks / months. 5% die due to respiratory failure (and this figure includes a lack of suitable hospital equipment)

Paralysed patients are fully conscious and can hear everything around them, usually theyre unable to move enough to signal their consciousness. Its very common for these patients to be very hypersensitive to touch, so paralysis + lots of body rotation by nurses who aren't aware of consciousness = a whole LOT of pain for many weeks.

An obvious change is the fact she's not home with us, the house is eerily quiet without her. I've also had to leave work to care for both my wife and our 10month old son. The GBS has affected us financially as we've both given up employment but our main focus is on her recovery. This is her 3rd hospitalisation since diagnosis. She said youre most welcome, there should be more awareness.

Im happy to hear of your friends recovery. Gives me hope. The fatigue is horrible :(

Husband set one up for me already just to cover rehabilitation so i can get back to looking after our son. Neurological physiotherapists aren't cheap ($260 a session). I could cry but i wont.

http://www.gofundme.com/2w9a9kk

Ive been attempting cryptic crosswords but my eyes are affected as well (not ms related) so i cant read. I listen to A LOT of music .

Glad to hear your BIL is recovered. I'm still waiting for my second round of treatment, that's why I'm in hospital for the 3rd time.