letheix

I come from an abusive home and will be changing my name as soon as I can afford to. It's not out of spite. I just want the chance to define myself instead of letting my past define me.

If I may, I also have cerebral palsy. No certain gestation date because my mother was told she couldn't become pregnant, but I weighed 1lb 8oz for reference. I'd want him to know that there's nothing shameful about being disabled, doing things a different way, or needing accommodations. When I was a kid, I knew I had cerebral palsy, but I didn't really put it in context. I struggled with some stuff and just felt bad about myself because I didn't realize why it was harder for me. Learning the history of disability activism and connecting with other disabled people has improved my life a lot. As his parent, it's your job to advocate for him and teach him how to advocate for himself someday. Wishing you and your family the best!

"Cree-ay-tore"

Hey! I also have CP. I have normal visual acuity with correction, but I do have ROP which has necessitated retinal surgery and an unrelated condition called visual snow. So first, I've gotten mixed information about how significant it is, but I am at higher risk for retinal detachment and subsequent visual impairment. I'd like to prepare for that possibility now. What skills would you say are the most important to learn?

Second, I'm a writer too! Not professionally yet, but I hope to be someday. Between my various conditions, I struggle with bad fatigue and difficulty focusing that has slowed down my writing. Is that something you've dealt with and, if so, how do manage?

Congrats on your book!

With a joke, what's the best way to describe a visual punchline? Matter of fact or is there a way to translate the humor?