laughingstoc

I have this condition and had regular lumbar puntures for about 3 years that eased the pressure and kept it under control. The best thing to do is have them done by an Anesthetist- they are fantastic at preforming them. The low pressure headaches afterwards can sometimes be avoided lying down for a couple of hours after and drinking a can of coke or a red bull. I did this each time and touch wood I was ok.

I have a vp shunt- I had it replaced twice within the first few months of having it. Yes there are pros and cons to this but ultimately it will probably save your sight. I'm on to my third and I don't even notice it now it's just there at the back of my head doing its thing! The only time it comes up in conversation is at the hairdressers if there is a new member of staff in and she is washing my hair and I just ask her to be careful massaging the shampoo around that area!

If you want to PM and ask me anything you can. But weigh up all your options. Change doctors if you have too. You maybe need to see a neuro-optomologist not a neurologist. My neurologist is trained in this area so I struck lucky.

I'm a little late to this but I had 2 brain surgeries within a couple of months of each other at Salford Royal and this is exactly what it felt like. It was like the waking from the best sleep ever into a dream state because of all the painkillers!! I didn't mind the dream state it was like being on another planet but being lucid very weird!!

The anticipation is awful waiting for that appointment and I wouldn't wish it on my worst enemy. Hopefully it will be soon and then you can start planning the lazy days of recovery- think how much Jeremy Kyle you can watch! Tbh I got bored of him after about 2 weeks!! I did binge watch breaking bad and lots of other stuff on netflix so if you haven't got it I would highly recommend it- it's worth it's weight in gold especially while your recovering and before find something to take your mind off things. PM if you like for suggestions or if you want to chat

Go for the deluxe menu as I like to call it!! Fentanyl with a bit of oramorph for the breakthrough pain! I was a bit of a frequent flyer at salford after my surgeries because of one thing or another (not painkiller seeking!!) so I tried them all. They were quite strict at salford about opiates and brain surgeries because of the risk of seizures after so they did use sparingly but I was pain free. Good luck with your surgery- when is it planned for?

No question just wanted to to let you know that Twins was one of the last films I watched with my grandmother. She loved it and it was probably one of the last times we as a family heard her laugh. Thanks