kmazer

Right, that's how pre existing conditions work.... That's why obamacare is so much more than what most people realize

Well nothing can stop that, prices and inflation and a growing industry with more chronically ill.... Nothing's perfect but at least we've taken a step in the right direction. No child can be told they are in eligible because of a preexisitng condition! Big things!

If you had known about the cf diagnosis prenatally, would you have still chosen to continue the pregnancy?

For the record, all transplant centers have that checklist. I was a coordinator at the Children's Hospital in Philadelphia, currently ranked #1. We made our kids get the dental checks too, except we had the money to have coordinators like me who handled all of that stuff. I distinctly remember having a patient who was from over seas, and had no insurance.... I called every free clinic in a 50 mile radius and pulled the strings needed to get him his appointment. No money involved, just stressing how critical this was and using my healthcare knowledge to get him what he needed.

Technically they wouldn't prevent you from getting the surgery, that's illegal. You just have to pay for it