kirra5152

Thank you! I wish you the best of health

I'm so sorry to hear that, I hope you are okay and I know it probably means very little coming from a stranger but you would have meant the world to her and have been the best thing for her when she was sick, there is nothing more comforting than having someone who loves you and cares and holds you, she was lucky to have someone like you

It's not something I have put a lot of thought into to be honest. At present I have the same plans as most.. travel, university etc. But when I get older I dont know if I will be able to have/will want to have children. I'm a pretty positive person, but occasionally when I'm very sick and have spent weeks in hospital or missed out on something I get pretty down and start to question whether it's worth doing all the treatments and things that keep me healthy

I'm really sorry to hear that you've been unwell over the last couple of years. I have only spoken to a few CF people myself. I take flucoxocillan, tobramycin and azithromycin (sorry for the terrible spelling). If you aren't on azithromycin you should definitely ask your specialist about it, it is a complete life saver.

Well firstly if I miss a medication or treatment it can range from severe stomach cramps and diahorrea to ending up in hospital. My daily treatment goes like this: Morning - wake up and inject myself with slow releasing insulin for my cystic fibrosis related diabetes (CFRD). Take an oral antibiotic called staphlex. Have breakfast and take enzymes, up to 5 depending on how much fat is in the meal. Day - take enzymes every time i eat, including breakfast and dinner this can mean up to 30 enzymes Afternoon - inhale nebulised hypertonic saline (usually takes about 15 minutes and makes you cough like crazy) then do physio using a device that you breath in and out of with a resistor (takes around 30 minutes) then inhale nebulised tobramycin with is another antibiotic (takes about 10 minutes) Night - take three different kinds of vitamins since my body doesn't absorb them naturally, take two different kinds of antibiotics (all oraly) than check my blood sugar levels using a finger prick