karencav

Sounds like you may have Eosinophilic Esophagitis (EoE); I am a mom with 2 preteen boys who have it.

You can learn a lot at the American Partnership for Eosinophilic Disorders. Go to: www.apfed.org

Don't waste your time with just any gastrointestinal physician; make sure you get one with a LOT of experience with EoE patients.

I see that you are 20 years old but since you seemed to developed the problem in high school, I believe your best bet is to start with an established center that specializes in pediatric eosinophilia. (They may be able to evaluate you anyway, and certainly should be able to steer you in the right direction.) Here are three:

The Center for Pediatric Eosinophilic Disorders at Children's Hospital of Philadelphia: http://www.chop.edu/service/center-for-pediatric-eosinophilic-disorders/home.html

Eosinophilic Gastrointestinal Disease Program at Boston Children's Hospital: http://www.childrenshospital.org/clinicalservices/Site2664/mainpageS2664P0.html

Cincinnati Center for Eosinophilic Disorders at Cincinnati Children's Hospital Medical Center: http://www.cincinnatichildrens.org/service/c/eosinophilic-disorders/default/

Best of luck to you!

When you were scoped, did your doctor take biopsies and check your eosinophil levels? Eosinophilic esophagitis is often misdiagnosed as GERD...