k6richar

My wife went through the exact thing you are doing right now. She first did it as a child before I knew her, then about 8 years ago, most recently a few months ago. as a child and 8 years ago they thought the seizures were coming from different parts of the brain and ruled out surgery. A few months ago they detected a common point they started at then spread to other parts of the brain. At this point they decided surgery may be an option.

2 months ago they did a similar test to what you are doing now except the probes are implanted surgically inside the brain. They confirmed all the seizures had a common starting point.

2 weeks ago she had surgery to remove the problem area, she was lucky that it was a "safe" area to operate. Unfortunately during the surgery or shortly after there was a brain bleed (AKA a stroke) and she is currently in the hospital stroke unit getting physiotherapy to get her right leg working properly again. Progress has been quite good, might be coming home this week with a cane. The doctors think it will be fully recovered in a bit of time. The most important part, she has been seizure free since the operation, before which she had multiple seizures daily.

Feel free to ask questions about our experiences if you want.

I guess my questions for you are:

have they done an MRI and found anything unusual? They did with my wife and could see an abnormality that was where the seizures started.

Do your seizures appear to start at one spot or start in multiple? I do realize it may be too early to tell from how long you have been there.

Have they given up on meds already? They spend over 20 years trying new meds and new combinations of meds with my wife. They wanted to control it with meds before surgery due to the risks.

Some meds have caused side effects that caused some personality issues. They did warn brain surgery does have a risk of depression or psychosis (pretty small risk), if anything she has been more upbeat since the operation, but they did just fix seizures that have been plaguing her for 20+ years. I would be upbeat as well.

When are we going to see a new season of The Venture Bros?