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joannasauer3 karma

Try compression stockings! They're annoying as hell but helped a lot for me.

joannasauer3 karma

I also have POTS and I can say with confidence that it is well worth being diagnosed. Although POTS tends to occur in young adults, and the symptoms fade over time, you could also have a relapse of sorts. It's better to know for sure what your condition is, in case there is a relapse of sorts.

joannasauer2 karma

Have loved you guys since the start! And my thoughts and prayers go out to Charles, Allie and the entire Trippy/Speed family. If anyone can kick cancer' butt, it's YOU Charles! Much love xoxo

joannasauer2 karma

I also have POTS so I just figured I'd share my experience as well.

Every time I go to my cardiologist (earlier in my diagnosis = once per week), they would do an Echocardiogram while I was relaxed, and while I was having an "attack" just to check for any sort of afib.

joannasauer2 karma

Sorry I'm totally invading this post, but I agree with jen235. Keep going to different doctors to get different opinions on what your diagnosis may be. It took me over 3 months do be correctly diagnosed with POTS. Be your own advocate and keep pushing for better doctors!