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internetwife19 karma

Same here, i used to get emails now they've fallen off. I have a rare blood type. I was thinking my marrow or whatever else would be special too. But nobody needs me yet. I want to help, been donating blood since high school. Let me give more damn it!

internetwife13 karma

I see what you did there. 0_0

internetwife6 karma

Are you Angels? I've seen you on reddit when we had our daughter. I couldn't get the form submitted at the time but was so happy to see you helping families like ours. I just got it to work and filled out an app this time. We were also blindsided with our daughters diagnosis.

First it was microcephaly. Then after a ct and mri we learned she has schizencephaly and polymicrogyria. We have gotten her seizures under control mostly and had to go with the gjtube because her meds took her appetite. During the pandemic nursing has been hit and miss. Lots of call outs, lots of people getting sick, lots of new nurses coming and going. I think the white board was a fantastic addition to the list. It really makes it easier to communicate with nurses and each other when it's all written down. I wish there was an organizer for medical equipment haha

Have you noticed a nursing shortage throughout the pandemic? I was told it's everyone having this problem. It makes sense.

internetwife2 karma

That's what we are doing/were doing but they pushed school start back a week and decided to start school on the day of my daughter's back surgery. So now we are in the hospital trying to recover mid pandemic and navigating online school with a new teacher and format. My son is staying with his nana doing online school with her helping him. Both of them have ieps and and are in specialized ese classes. Because of my daughter's medical complexity we were going to do at home learning anyway. I very much treat them like bubble boy kids. It just sucks for the parents that don't have a choice to send their kids to a family member or to homeschool school them. A lot of parents are having to go to work to pay rent and food. So they don't get a choice really. Those are the kids that are going to suffer and their teachers and bus drivers and school staff that support the in school kids.

internetwife1 karma

I imagine its like monopoly when you want to buy the mortgaged property of a player that bankrupted or quit. You divide up all the properties evenly.

You may have the property but you have to pay back the mortgage fee on the card back to the bank to flip it over and then you can start collecting rent on it.

At least that is how i imagine it is like