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i_did-it13 karma

You probably have a good connection in Ecuador, but just in case, I thought I'd mention that I went to the home/hummingbird refuge of a man not too far from Quito. He has feeders and an open balcony to sit and watch. I went about 10 years ago so I'm a bit fuzzy on the details but I can get you the contact info of my husband's cousin who is a travel agent there and knows the hummingbird man.

i_did-it1 karma

Thank you so much for doing this AMA. I find it fascinating that you were diagnosed so early (you can still carry a conversation, type, write, etc.) I am guessing you have a good neurologist. Would you mind elaborating on the symptoms that either made you ask more questions or that made your doctor decide to change the diagnosis? I think it could be helpful for others. I have been on some forums or groups for dementia or LBD because my dad had it. He recently passed away but was not diagnosed until 2015. He was only diagnosed with Parkinsons a few years before that. He was much older so i am sure that was a factor (senility vs. dementia and getting old vs. physical complications of disease).

I am going to share your blog with a facebook group for caregivers of people with LBD. Thank you.