Highest Rated Comments

hoppy1028130 karma

How are you feeling? As a 32 year old diagnosed 3 years ago with end stage renal disease, I wish you the best of luck on your hunt. I hope peritoneal is working out for you, it made my body react in such weird ways to the point where i lost all muscle in my legs and was barely able to walk. Ever since i went back on hemodialysis, my strength began to return and i can walk better as I still can’t move my toes and don’t have much range of movement in my ankles. Best of luck to you

hoppy102889 karma

Any specific medicine you are currently on?

As a person currently at dialysis as i type, thank you

hoppy102813 karma

How long have you been on the transplant list?

I am in the same boat as you, I was diagnosed with end stage last year after never having any problems, after 4 months on Hemo I went on to PD, which evidently didn't take enough toxins out and within 6 months I went from being totally mobile to now being in a wheelchair with sever e metabolic neuropathy. I am back on Hemo and starting to feel a little better but still have lost total feeling in my Feet. I just got the last surgery that I needed to get on the transplant list last week. Good luck to you my friend

Keep an eye out for this but my nephrologist and every other doctor I have seen has never saw it escalate this quickly.

hoppy10288 karma

I can stand enough to sit in a chair or get into bed, but I have no balance so I have to hold onto something at all times, in November I actually fell while using a walker and fractured my ankle and broke 3 bones in my other leg so that made the decision to be in it permanently.

They told me that my brother is a 3/4 chance to be a match and he can get officially tested when I get on the list.

Luckily I do not have diabetes, it's just weird as the feelings that I remember like how to move my toes, I feel like it's doing something but nothing moves, I have also lost all muscle in my calves and it hurts when any pressure touch them.

Mine is just a very weird progression but I have a wife and 4 year old that I have to keep positive for

Hope the best for you through the transplant process and keep your head up high.

hoppy10285 karma

Pm me if you have questions on home hemo, hopefully i won’t hear from you as that means you’re still progressing