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grandmabc18 karma

My grandson is albino and the doctors didn't diagnose it until he was a few months old. We'd been worried about his vision as he didn't watch our faces like babies usually do and had constant nystagmus which I had no clue about at the time. They initially said he was pretty much blind and could only see light and dark which is just not true. His nystagmus is only apparent when he's sleepy now.

grandmabc7 karma

Once he'd been diagnosed, it was fine. This is Wales, UK, and he was allocated a "blind lady" by the health service who does regular assessments, coordinates with the school etc to make sure he gets the support he needs e.g. sitting closer to the board, shade in the classrooms, not having to share a worksheet etc. Now that he's obsessed with Marvel and DC, I think he's quite enthralled to have a mutation of his very own.

grandmabc6 karma

That would be a fascinating experiment. Maybe we all smelled better when we only had natural fibres to wear. I think it's really odd how wool clothing doesn't hang on to body odours, but retains the smell of fabric conditioners for so long. I spin and process my own wool yarns and the fabric conditioner fragrance lasts for weeks in pure wool.

grandmabc2 karma

That was beautifully written and very practical advice. When something is in your head 24-7, finding that little glimmer of relief, such as your coffee time can be the key. From little acorns...