gotvanilla

I have POTS. Neurologist referred me to a cardiologist who made a definitive diagnosis with a tilt table test. It was easy and non invasive.

Treatment is more if a trial and error process, and I understand it is different for everyone. For me, I increased my salt intake and I make a huge effort to stay hydrated. Those simple changes made a world of difference. I do other things too, and now manage my symptoms quite well.

If you want more info let me know.

I have to be careful how much I drink or else it raises its ugly head again. Alcoholism is likely a significant contributing factor. I didn't even know there were subtypes! I guess my version is pretty basic. I had/have juvenile arthritis but I never considered they could be related!

I did beta blockers for a couple of years and eventually my cardiologist agreed that I could atop taking them. I am not sure if they made a real difference or not.

In addition to staying hydrated (seems too simple but it really works!) I also did exercises that helped "train" my body. The doc admitted studies on efficacy were inconclusive but it was worth a try. Worked for me.

Life is so normal now it's almost easy to forget how bad it used to be.

I think your takeaway is that there is hope for improvement. You need good medical care. If you aren't getting it, change docs. And make sure you are completely open about potential exacerbating factors like alcoholism.

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