gameday93

My range of motion is very poor. My original allograft became infected, and it was replaced with full metal about a year ago. My humerus head is dislodged 90% of the time, so picture walking around with a separated shoulder all the time. I have no rotator cuff anymore. I had a similar regiment as you: doxirubicen, vincristine, cyclophosphamide, then 2 weeks later etoposide and ifosfamide. 16 cycles, 8 of each. Had radial nerve palsy after surgery and had a tendon transfer to fix that.(wrist and hand is about 85% range of motion). Ive never found someone else who had it in their humerus like I, I'm ecstatic to hear you're doing well. Maybe we can trade stories someday if you're okay with that. :)

6 years out here of Ewing's Sarcoma friend, and very happy for you to be such a good supporter of a great cause. Including some of my pictures. Hope you see this!!!!!

As to the questions:

1. How is your range of motion?
2. What was your chemotherapy regiment?
3. Do you hate when people call you brave and strong? EDIT: I realize this sounds bad, I personally hate it, was wondering if anyone else felt the same.

I could talk about this forever. Feel free to PM me :) Included are some xrays

Link 1 2