freckleface117

I have very similar scar and hate it. Not heart related, but had a transternal thymectomy (full sternotomy). My scar didn't heal into a nice little invisible line like some people's...it's a hypertrophic mess with a big keloid bulge at the very top and caved at the bottom. My drain hole scars are also still very pronounced.

I think it's okay for us to hate looking at our scars (either because of their appearance or the memories associated), but we do have to put it into perspective. We're so lucky to have access to the type of healthcare where these complicated and life-saving surgeries are possible. Hoping that over time I will learn to love my scar too!

Hey Toomee,

I just want to say how brave you are! I am so impressed with you and your wonderful Dad :-) I hope you guys have a great time on your trip!

Side note: Dad...I'm SO impressed with you for all you do and how candid you are with your answers. I can tell how much it means to Toomee (and I'm sure the rest of your family too). I have a neuromuscular autoimmune (MG) and it is no where near as severe as Toomee's condition...but I have NO idea what I would do without my people to help me through it. You're a hero in so many ways.

PPS. Also directed toward Dad...I'm not sure I'd watch it given your family's situation (could be super hard/super sensitive), but on the off chance you've seen 'The Fundamentals of Caring'...how well did they portray Duchenne's?

Thanks again so much for being so open about your family's story. Sending much love!

Thank you so much for your quick and thoughtful response!

Brave (and probably very healthy) to expose yourself to pain and occasionally make yourself feel what you're likely trying to suppress day to day.

Thanks for the recommendation of Joyland. I'll have to look into it :-)

You are awesome for being so open. I guarantee that I'll think of your family and Toomee often and will always be wishing you the best!