ekrej

Coincidentally I watched the documentary called "12th and Delaware" last night about an abortion clinic in Florida that dealt with pro-life protestors every day and they'd try to convince patients to go to their "family planning centre" across the street instead of getting the abortion. They were really shady and would tell the women that they'd help them financially and would throw out these bullshit statistics. it was insane.

Have you had to deal with protestors or backlash from your community in general because of what you do? Also, has you or anyone you've worked with had to deal with violence against them?

yeah, that's apparently the exact reason those people moved in across the street from the abortion clinic in Florida. They even showed a scene in the documentary where one of the staff members was telling her coworkers not to immediately say no if someone calls and asks if they do abortions, so that way they can rope them in and get them to come to the office. It was weird as hell.

That's terrible that the doctors have had threats and protestors outside of their homes. :( I'm glad there has been no violence against you guys though! I hope it stays that way and thank you for what you're doing.

Hi, fellow RSD sufferer here! I'm also a college student as well and I just wanted to ask...have you dealt with ignorance and weird comments from people because they don't understand chronic pain? I've been dealing with RSD (and other chronic illnesses) since I was a child but it seems like the ignorant comments (like "you must be faking, you only use a wheelchair SOMETIMES") has increased in the years since I've been in college. Also, how to do you manage college life and dealing with your health problems? Hope you're doing well. :)

Not OP, but I agree with the suggests others have made. Also, if your friend is on Facebook, I have found that there are many EDS related facebook support groups on there, some of which are local (I found one that is specific for the province I live in that has been an amazing help to me) and may help her find resources in her area.

omg yes! I was SO weird on topamax for the first little while. Even now, anytime my neurologist changes my dosage, it's like I'm drunk for a few weeks. For some reason I'm really sensitive to that stuff..it's weird but amusing to my friends. In my sophomore year of college, my neuro changed my dose again and according to my roommate I went on a 20 minute rant about deodorant residue.