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dpad8526 karma

Thank you for your time, Mr. Nikkawa.

Will there ever be a Disgaea title that comes from the Celestia perspective? In numerous titles, you've illustrated that Celestia isn't all perfect rainbows and unicorn farts - some corruption is inherent and there is some dissension in the ranks as far as Celestia's level of influence on the rest of creation.

Also, will we see Celestian Prinnies, Dood?

dpad8510 karma

I always figured they'd be far lighter blue with angel wings on the back. Not inherently perfect, but with the personalities of normal prinnies if they were treated better for their work - obviously that would adjust their personalities so they were more loyal to their Celestian masters. Some may have the "anti-demon" superiority complex that most Celestians seem to harbor. Again, this is all my two-cents here.

Added note: Holy crap, the creator of one of my favorite franchises says I have a very interesting idea! I'm honored and humbled!

dpad853 karma

The O2 realization is eerily like mine. I was in recovery for the first week after transplant and had the oxygen on 1LPM and fell asleep for a nap - nurse came in and turned it off while I was asleep.

I woke up thinking I was hitting 99-100 saturation on only 1L, nurse comes in and says it's been off for a while. Felt extremely happy and relaxed realizing I was pulling 100% saturation on room air. "It's been a long time since I've been able to do that" was the first thing out of my mouth upon realizing it.

Realized conversations are a whole lot quieter since you're not coughing as much, haven't ya?

EDIT: On a med note, are you on Cellcept or Rapamune to compliment the Prograf?

dpad853 karma

As a fellow CFer, congratulations on the lungs! Your post-transplant med doses will, hopefully, gradually go down as your body decides what the minimum it needs of the immune-suppression meds to keep from rejection setting in. That all depends on how your doctors look at matters.

-How long were you hospitalized after transplant? -How was it that first moment you realized you didn't need oxygen? Did you keep feeling like something was missing when the cannulas weren't a fixture?

-How often do you look around the house at your aerosol medications, the Vest, and go "Look at all this shit I don't need anymore!" ?

dpad851 karma

My transplant was...wow...TWELVE years ago on Halloween. Transplanted at St. Louis Children's Hospital - one of the best in the country.

For about 7 years it was stable as a rock but rejection set in about 5 years ago - fast and hard. Both the minor and major (antibody) rejection. I'm finally comfortable enough to admit to myself that I could have been better about my meds and probably delayed the rejection by a little bit longer, so don't take my experience as typical at all.

My lung functions now are stable - there are ways now to stop the antibody rejection. When I was transplanted, they danced around saying "If you get antibody rejection, you may want to get your affairs in order" because there was no real way to slow it down or stop it in the long term. However, my functions are also lower than pre-transplant. Overall, I still feel better than when I was immediately pre-transplant. It's very odd, I know, but it makes a huge difference when your body isn't in constant "Infection fighting" mode that the CF body is in.